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The Ethics of Philosophical Exemptions

photograph of syringe and bottle of antiobiotics

While every state in America has legislation requiring vaccinations for children, every state also allows exemptions. For instance, every state allows a parent to exempt their child from vaccinations for legitimate medical reasons: some children with compromised immune systems, for example, are not required to be vaccinated, since doing so could be potentially harmful. However, many states also allow for exemptions for two other reasons: religious reasons, and “philosophical reasons.” While religious exemptions are standardly granted if one sincerely declares that vaccinations are contrary to their religious beliefs, what a “philosophical reason” might consist in varies depending on the state. For example, Ohio law states that parents can refuse to have their children immunized for “reasons of conscience”; in Maine a general “opposition to the immunization for philosophical reasons” constitutes sufficient ground for exemption; and in Pennsylvania “[c]hildren need not be immunized if the parent, guardian or emancipated child objects in writing to the immunization…on the basis of a strong moral or ethical conviction similar to a religious belief” (a complete list of states and the wordings of the relevant laws can be found on the National Conference of State Legislatures website).

Of course, not all states grant exemptions on the basis of any reason beyond the medical: California, Mississippi, and West Virginia all deny exemptions on the basis of either religious or philosophical reasons. And there seem to be plenty of good reasons to deny exemption except only in the most dire of circumstances, since vaccinations are proven to be overwhelmingly beneficial both to individuals, as well as to the community at large by contributing toward crucial herd immunity for those who are unable to be vaccinated due to medical reasons.

At the same time, one might be concerned that, in general, the law needs to respect the sincere convictions of an individual as much as possible. This is evidenced by the fact that many states provide religious exemptions, not only for vaccinations, but in many other different areas of the law. Of course, while some of these exemptions may seem reasonable, others have become the target of significant controversy. Perhaps most controversial are so called “right to discriminate” conditions that, for example, have been appealed to in order to justify unequal treatment of members of the LGBT community.

While there is much to say about religious exemptions in general, and religious exemptions to vaccinations in particular, here I want to focus on the philosophical exemptions. What are they, and should they be allowed?

As we saw above, the basis for granting philosophical exemptions to vaccinations seems to simply be one’s sincere opposition (how well-informed this opposition is, however, is not part of any exemption criteria). In practical terms, expressing philosophical opposition typically requires the signing of an affidavit confirming said opposition, although in some cases there is the additional requirement that one discuss vaccinations with one’s doctor beforehand (Washington, for example, includes this requirement). In general, though, it is safe to say that it is not difficult to acquire a philosophical exemption.

Should such exemptions exist? We might think that there is at least one reason why they should: if sincere religious conviction is a sufficient basis for exemption (something that is agreed upon by 47 states) then it seems that sincere moral or philosophical conviction should constitute just as good of a basis for exemption. After all, in both cases we are dealing with sincere beliefs in principles that one deems to be contrary to the use of vaccinations, and so it does not seem that one should have to be religious in order for one’s convictions to be taken seriously.

The problem with allowing such exemptions, of course, is the aforementioned serious repercussions of failing to vaccinate one’s children. Indeed, as reported by the PEW research center, there is a significant correlation between those states that present the most opportunity to be exempted – those states that allow both religious and philosophical grounds for exemption – and those that have seen the greatest number of incidents of the outbreak of measles. Here, then, is one reason why we might think that there should be no such philosophical exemptions (and, perhaps, no exemptions at all): allowing such exemptions results in the significant and widespread harm.

The tension between respecting one’s right to act in a way that coincides with one’s convictions and trying to make sure that people act in ways that have the best consequences for themselves and those around them is well-explored in discussions of ethics. The former kinds of concerns are often spelled out in terms of concerns for personal integrity: it seems that whether an action is in line with one’s goals, projects, and general plan for one’s life should be a relevant factor in deciding what ought to be done (for example, it often seems like we shouldn’t force someone to do something they really don’t want to do for the benefit of others). When taking personal integrity into account, then, we can see why we might want there to be room for philosophical exemptions in the law.

On the other hand, when deciding what to do we also have to take into account will have the best overall consequences for everyone affected. When taking this aspect into consideration, it would then seem to be the case that there almost certainly should be only the bare minimum of possibility for exemptions to vaccinations. While it often seems that respecting personal and integrity and trying to ensure the best overall consequences are both relevant moral factors, it is less clear what to do when these factors conflict. To ensure the best consequences when it comes to vaccinations, for example, would require violating the integrity of some, as they would be forced to do something that they think is wrong. On the other hand, taking individual convictions too seriously can result in significantly worse overall consequences, as what an individual takes to be best for themselves might have negative consequences for those around them.

However, there is certainly a limit on how much we can reasonably respect personal integrity when doing so comes at the cost of the well-being of others. I cannot get away with doing whatever I want just because I sincerely believe that I should be able to, regardless of the consequences. And there are also clearly cases in which I should be expected to make a sacrifice if doing so means that a lot of people will be better off. How we can precisely balance the need to respect integrity and the need to try to ensure the best overall consequences is a problem I won’t attempt to solve here. What we can say, though, is that while allowing philosophical exemptions for vaccinations appears to be an attempt at respecting personal integrity, it is one that has produced significant negative consequences for many people. This is one of those cases, then, in which personal conviction needs to take a backseat to the overall well-being of others, and so philosophical reasons should not count qualify as a relevant factor in determining exemptions for vaccinations.

The Ethics of Vaccination Exemptions

photograph of H1N1 vaccine bottles

On January 28, 2019, Washington Governor Jay Inslee declared a state of emergency in response to a spreading outbreak of measles in Clark County, WA. Measles is a highly contagious airborne infection caused by a virus in the paramyxovirus family. Before a vaccine was developed in 1963, the disease infected over 3 million people a year in the United States and resulted in 400 to 500 deaths annually. In 2000, thanks to a highly effective vaccination system in the U.S., the measles disease was declared eliminated by the Center for Disease Control. However, measle outbreaks have begun to emerge again in recent years due to a growing number of parents who refuse to vaccinate their children—often falsely claiming that vaccinations are either unsafe of unnecessary. Do parents against vaccinations, also called “anti-vaxxers,” have a legal right to refuse vaccinations for their children even if it means jeopardizing public health?

While the history of the anti-vaccination movement can be traced all the way back to the 1800’s, a study released in 1998 that claimed a false link between the measles vaccinations and autism has fueled much of the contemporary anti-vax fire. Author of the study, British doctor Andrew Wakefield, was found to have been paid by a law board to falsify evidence in support of a litigation case that claimed vaccines had harmed children. The study was formally retracted by its publisher in 2010 and Wakefield lost his licence to practice medicine in Great Britain. Since then, numerous studies (including one released on March 5th, 2019)  have failed to find any link between vaccines and autism.

There are legitimate medical reasons to delay or avoid vaccinations, but they are rare. While some doctors have decided to profit off the anti-vax craze by selling false medical exemptions to parents, most who refuse vaccinations for their children do so through non-medical, state-issued means. Most common is an exemption based on “religious beliefs.” Overall, no major world-religion has a theological objection to vaccinations. However, certain offshoots of ‘faith-healing’ denominations, such as Christian Science, reject modern medicine altogether. Some religious fundamentalists also claim that vaccines are unnecessary. Gloria Copeland, an Evangelical Christian minister who sat on the Trump campaign’s evangelical advisory board, claimed in a 2018 video on Facebook that Jesus was the best protection against the flu and people can avoid the disease by repeating “I’ll never have the flu.”

Many states also allow for “philosophical” or “personal” vaccine exemptions that do not require religious backing. Much of the motivation to acquire such exemptions stems from the spread of misinformation on social media sites like YouTube, Facebook, and Pinterest. Ethan Lindenberger, an Ohio teen who chose to get vaccinated against his parents wishes spoke of the necessity in addressing misinformation when he testified before congress on March 4th, 2019. Lindenberger said, “For my mother, her love, affection and care as a parent was used to push an agenda to create a false distress, and these sources which spread misinformation should be the primary concern of the American people.”

Non-medical vaccine exemptions (NMEs) endanger public health by reducing “herd immunity.” No vaccine is 100% effective, but when a population is highly vaccinated it prevents the spread of germs from one person to another—effectively protecting the population. The less vaccinated a population becomes the more susceptible both vaccinated and unvaccinated individuals are to diseases. This is why public schools require vaccinations for children who attend. In 2015, the Second Circuit U.S. Court of Appeals in Manhattan upheld a ruling that students who receive religious exemptions can be kept out of the classroom during a disease outbreak. The court stated, “The right to practice religion freely does not include liberty to expose the community or the child to communicable disease or to the latter to ill health or death.”

Proponents of NMEs believe public health should not take precedence over individual liberties and that mandated vaccinations are a threat to personal autonomy. However, in the case of public spaces, such as schools, vaccines are analogous to other government mandated safety measures. Exceeding the speed limit, running a red light, or breaking other rules of the road is illegal when driving because it threatens the safety of others. The famous ‘harm principle’ of British political theorist John Stuart Mill argues that infringing on personal liberties is justifiable when it protects others from harm. Under this principle, vaccination exemptions should be highly restricted since they pose a threat to public health.

Dr. Barbara McAneny, the American Medical Association’s president, argues, “Protecting our communities’ health requires that individuals not be permitted to opt out of immunization solely as a matter of convenience or misinformation.” A 2013 measles outbreak in Brooklyn, New York that infected 58 people was caused by a single unvaccinated child. Such an incident shows that, to keep a population best protected from disease, vaccination exemptions should only be allowed for legitimate medical reasons. While preventing the spread of misinformation is paramount to combating the rising rates of NMEs that are endangering both domestic and global health, the most effective means of reducing communicable disease is to do away with NMEs all together.

Pinterest’s Block on Anti-Vaccination Content

Photograph of hands of a scientist, under a sterile hood, preparing a vaccine

Pinterest, the good-natured social media site where users re-pin new ideas and things to try, has made recent headlines for their stance against anti-vaccination propaganda. In fall 2018, Pinterest quietly removed results to vaccination-related questions from the search bar.  Now, when you type “vaccine” or “anti-vax,” a pop-up will relay that there is no related content and will provide a link to the community guidelines. Reported first by the Wall Street Journal, Pinterest finally disclosed their choice to censor the questionable health claims made by anti-vaccination groups.

Pinterest’s decision to block vaccines in their search domain was widely based on the fact that the site had become a hub for anti-vaccination activists. These groups aim to educate parents regarding the dangers of vaccinations but with theories that are unsupported by peer-reviewed, scientific research. The tactics used are typically fear-inducing photographs or stories about harm to children caused by vaccinations without any scientific proof. The groups claim to offer parents the “most transparency” but also don’t mention the dangers of not vaccinating. Pinterest’s response aimed to discontinue the spread of misinformation and falsehoods on their website.

When it comes to vaccines, the spread of misinformation could have a devastating impact on individuals and the society. There has been an increase in confusion and mistrust among the public when it comes to vaccines in general. One of the most noteworthy fear-causing publications was by the doctor Andrew Wakesfield, who suggested a connection between the measles, mumps, and rubella (MMR) vaccine and the development of autism in young children. Although deemed fraudulent, it is considered the beginning of the anti-vaccination movement. This movement is equally seen in the cases of influenza in America. Last year during the 2017-2018 season, there was a record-breaking number of hospitalizations and deaths among children in the US with less than half of Americans receiving the flu shot. It is because of these that World Health Organization (WHO) has recently listed the anti-vaccine movement a top health threat for 2019. When Pinterest decided to curtail vaccine-related content on their site public, it raised the question; should social media censor for misinformation?

Pinterest’s new policy stems from the fear that misinformation can have “detrimental effects on a pinner’s health or on public safety.” The guidelines officially state that the website bans the “promotion of false cures for terminal or chronic illnesses and anti-vaccination advice.” A report found in 2016 claimed that 75 percent of posts on Pinterest referring to vaccines were negative. In addition, other studies have found that 80 percent of mothers and 38 percent of fathers in the US have used Pinterest. It is likely that mothers and fathers, looking for advice regarding their children’s heath, ran across posts on Pinterest with anti-vaccination rhetoric. One could argue that media sites have an obligation to censor this kind of propaganda for public health and safety reasons. On the other hand, even well-intentioned censorship threatens to intrude on our rights protecting free speech (also discussed in this Prindle Post article about the case of Alex Jones).

With a website that is used by mothers and fathers, restricting these groups’ ability to voice their concerns or opinions could be seen as a commentary on parenting styles. Vaccine hesitancy is often caused from worries about side effects, cost, moral or religious obligations, or lack of knowledge about immunizations. There is value in the autonomy that parents have in choosing whether or not to vaccinate their children because they have the right to make medical decisions focused around their own values. In addition, who is to say whose opinion is more valid regarding vaccinations? Who’s to say which opinions deserve censure? Pinterest approached this issue in banning all vaccine-related information, reputable or not. This absolute censorship, while avoiding the bias of what is considered a reputable source, could also be seen as problematic. It is taking the opportunity away from readers to decide for themselves what sources they think are credible or not and through Pinterest they cannot be educated on the subject to any extent. A spokesperson from Pinterest, Jamie Favazza says, “Right now, blocking results in search is a temporary solution to prevent people from encountering harmful misinformation.”

Vaccine misinformation isn’t only a Pinterest problem; other social media outlets like YouTube and Twitter have been infiltrated by vaccination misinformation as well. YouTube’s policy doesn’t allow ads for anti-vaccine videos. Twitter has no specific policy on the matter. A spokesperson for Twitter, Katie Rosborough, said that “We, as a company, should not be the arbiter of truth,” and also added that, “the company was working to surface the highest-quality and most relevant content first.”

Social media represents an open platform for people to voice interests and create spaces that unite beliefs. But should some spaces not exist and should some beliefs not be circulated? In the case of anti-vaccine movement, people continue to adhere to their beliefs which further energizes the movement and polarizes the theories. With our ever-growing reliance on social media for information, social media outlets have a reason to worry about the ramifications of their content, especially in influencing user’s decisions about their health.